Thursday, September 19, 2013

heart update round 2 and recital pics!

Dr. King called today. Official diagnosis is dextracardia with L-transpostion of the great arteries. No heart cath or MRI. But one more echo with the specialist from New Orleans to review her leaky valve and then semi annual appts to watch for heart block. Hart block is an abnormal heart rhythm. From what I can tell that will happen. We just can't predict when. A pacemaker is the fix for that. From a very limited research on my own, this is pretty rare. One article suggested that only .5 - 1% of all people with congenital heart defects have this one. That's roughly 5,000 - 10,000 people in the US. Not sure how accurate that is.... We are not limiting her activity. She can play as hard as she's comfortable with. At 4 I'm not sure she can accurately measure what she's comfortable with so I do plan to start talking to her about it in simple terms. We are to watch out for extreme fatigue, dizziness, headaches, fainting and chest pain. Or if we think she just looks funny. I think I'm going to look for a CPR class soon. We all know I'm not a paranoid person but if something happened on my dime and I wasn't prepared I'd never forgive myself. I may make my family and her dad take the class too. If y'all are reading this, get ready! Matt and jenny are excused since they are trained medical professionals! Dr. King's words were, "considering the conversation we could be having, this is a best case scenario." So I'm relieved and worried at the same time. Not as worried as I was but still....

Now for the awesome pics Stacy Scheer took of o at recital back in may!!

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